Success for Luton Children’s Epilepsy Pilot at HSJ Awards 2022

<strong>Success for Luton Children’s Epilepsy Pilot at HSJ Awards 2022</strong> image

Home » Success for Luton Children’s Epilepsy Pilot at HSJ Awards 2022

A Children’s Epilepsy Pilot in Luton has been named the winner of the ‘Using Data to Connect Services Award’ at the Health Service Journal (HSJ) Awards 2022.

The ‘Digitising Care for Children with Complex Epilepsy’ pilot, which is a joint project with Bedfordshire, Luton and Milton Keynes Integrated Care Board, Bedfordshire Hospitals NHS Foundation Trust and Luton children and adults community health services (part of Cambridgeshire Community Services NHS Trust), aims to make things easier and equip parents with all the information they need to support their child.

The inspiring initiative, which was introduced in 2020, involves a new patient-controlled medical record called ‘Patients Know Best’ (PKB), a completely secure digital platform which parents can access from any computer or smartphone. Parents can use PKB to store their child’s medical history and medication regime and to log information about their child’s seizures (where and when they happen, how long for, any possible triggers) for their clinicians to see.

The HSJ Awards ceremony took place on Thursday 17 November and celebrated the outstanding efforts and achievements that NHS teams have delivered. With 1,040 entries across 25 categories, the awards applaud the “high-flyers” of healthcare excellence in both the NHS and its partners who strive to improve outcomes and services for both patients and staff alike.

The ‘Using Data to Connect Services Award’ is about recognising NHS initiatives where data sharing has made a real difference.

Usha Panchal, Clinical Pharmacist and Complex Paediatric Lead, Bedfordshire, Luton and Milton Keynes Integrated Care Board, said: “We’re absolutely thrilled and delighted to win this prestigious award. It’s a reflection of the fantastic work put in by the team, but more importantly shows just how beneficial this technology is for our children and families with epilepsy who deserve the best possible care.”

Liz Stevens, Children’s Epilepsy Specialist Nurse, Luton Children and Adults Community Health Services (part of Cambridgeshire Community Services NHS Trust) said: “It is an honour for our Epilepsy Team to have won this award. It is a privilege to be included among leading health professionals delivering innovative and quality work, as we strive to provide the best for our patients. I would like to pay tribute to all our amazing parents, young people and children who have engaged with PKB and the project team. Thank you also to the mother of one of our children for supporting both the presentation and kindly attending the ceremony too.

“This is really a testament to the collaborative approach in the Luton system; colleagues from Luton and Dunstable Hospital and the BLMK Integrated Care Board have been instrumental to making this work and the PKB system facilitates our joint working.”

Dr Tekki-Rao, Consultant Paediatrician and Lead for Paediatric Epilepsy and Neurology, Bedfordshire Hospitals NHS Foundation Trust, said: “This is an incredible achievement and truly shows that by working in partnership, we can improve patient care and experience.”

A full list of categories and their winners can be found on the HSJ website.

View all news

Latest news and highlights


21 February 2024

“Please use NHS services wisely” call as new NHS strike goes ahead

Senior doctors in Bedfordshire, Luton and Milton Keynes have again warned of potential disruption to local health services over the next week, as further industrial…


19 February 2024

ICB appoints Board-level champion to oversee progress on DennyReview health and inclusion

Lorraine Sunduza, interim Chief Executive of East London NHS Foundation Trust (ELFT), has been appointed Board champion to support the system response to the Denny…


14 February 2024

Look after your heart health this Valentine’s Day

Tennyson famously wrote that “In the Spring a young man’s fancy lightly turns to thoughts of love,” but as Valentine’s Day arrives, local doctors have urged men and women of…


12 February 2024

Parents urged to use half term as chance to catch up on…

Parents of children who are not fully vaccinated against measles have been urged to use this February half term as an opportunity to get them the protection they need, as…


9 February 2024

NHS waiting list in East of England falls for third month in…

The NHS waiting list in the East of England fell in December for the third month running, despite ongoing industrial action and winter pressures continuing to hit the region’s health…


9 February 2024

Thousands in the East of England take the ‘learn while you earn’…

More than 2,400 new apprentices started with the NHS in the East of England last year providing more opportunities for people to build rewarding careers in the NHS, whilst boosting…