Neurodiversity Celebration Week

<strong>Neurodiversity Celebration Week</strong> image

Home » Neurodiversity Celebration Week

This week (13-19 March) is Neurodiversity Celebration Week. Neurodiversity Celebration Week is a worldwide initiative that challenges stereotypes and misconceptions about neurological differences.

It is estimated that around 1 in 7 people in the UK are neurodivergent, which is an umbrella term used to describe alternative thinking styles such as dyslexia, developmental co-ordination disorder (dyspraxia), dyscalculia, autism, and attention deficit hyperactivity disorder.

You can read below about how partners in Bedfordshire and Luton have been working to provide the parents and carers of those with a neurodiversity diagnosis with the support, information and resources they need.

Local Support for Young People with a Neurodiversity Diagnosis

Getting a neurodiversity diagnosis– which can include conditions such as Autism Spectrum Disorders (ASD) and Attention Deficit Hyperactivity Disorder (ADHD) – for your child can leave families with lots of questions, including what they should do next.

Families that use the community paediatric services across Bedfordshire and Luton provided feedback via focus groups, parent panels, and family and friends surveys, and they indicated that there was a need for more information, resources and support following a diagnosis.

During 2021, work was undertaken across Bedfordshire and Luton Children’s Services on a project to create a ‘Neurodiversity Diagnosis Support Pack’. The support pack aims to be a one-stop shop for parents and carers to access information and support following a neurodiversity diagnosis. The pack includes a variety of information including videos, infographics and animations. It can also be translated into a variety of languages, audio options or Easy Read at the click of a button.

The project was co-produced by parents/carers and young people, and the project group included Bedfordshire and Luton Community Paediatrics Services, Child and Adolescent Mental Health Services (CAMHS), our three local authorities, Parent Carer Forums and Autism Bedfordshire.

From the initial discussions, feedback revealed that language commonly used during the diagnosis process – such as “disorder”/“lack of”/“problems” – is seen as negative, which was having an impact on the young people and their families. The project team took this on board and ensured that the support pack identified and promoted the positives of neurodiversity.

This resulted in the inclusion of a dedicated section sharing lived experiences from local young people, inspirational role models, and a series of interviews with young people, parents and clinicians sharing the positives of neurodiversity for them.

Following the support pack being distributed, one of our local schools said:

“This is fantastic. Thank you very much, this is very important to see the positive approach and detailed information. I have shared with parents and staff, and have had many great responses from parents, as well as staff, who have children with a neurodiversity diagnosis. So please pass our thanks on.”

You can watch a video linked below explaining the journey of the Neurodiversity Diagnosis Support Pack including what the pack is, and brilliant commentary from some parents and a clinician involved on their experience – https://vimeo.com/636992132/eae8fd81e4

View all news

Latest news and highlights

News

23 April 2024

COVID-19 Spring 2024 Vaccination Programme Update      

The COVID-19 spring programme will continue to focus on those at greatest risk of getting seriously ill, who will benefit the most from a further…

News

22 April 2024

Local NHS organisations take the lead as world marks Earth Day

As the world marks the annual Earth Day (Monday 22 April), NHS organisations in Bedfordshire, Luton and Milton Keynes have shown the way forward by…

News

16 April 2024

Local GP urges eligible patients to get Spring COVID jabs

People in Bedfordshire, Luton and Milton Keynes who are eligible for a COVID-19 spring vaccination have been advised that they can now book an appointment or attend a walk-in clinic,…

News

10 April 2024

Tackling health inequalities in the Roma community

Translation services, better communication and an understanding of how to access health and care services could break down barriers and improve the health of Roma people, according to a report…

News

5 April 2024

Leighton Buzzard Update – 05 April 2024

In our last update in February 2024, we were pleased to discuss the Winter Pressure Clinics delivered in the Town. These clinics, which finished at the end of March 2024,…

News

28 March 2024

Bedford Warm Homes scheme improves health and reduces carbon emissions

53 households with residents who have a chronic health condition in Bedford Borough have benefited from a local scheme to enhance their domestic fuel efficiency, which will not only improve…